Title : Biopsychosocial burden of patients with peripheral facial paralysis in China: A qualitative study
Abstract:
Aim: To explore the biopsychosocial burden of patients with peripheral facial paralysis within a Chinese collectivistic cultural context and to identify implications for a culturally congruent, family-centered care model.
Method: Seventeen patients diagnosed with peripheral facial paralysis at a tertiary hospital participated in semi-structured, in-depth interviews conducted between January and May 2025. Participants were selected via purposive sampling. The data were analyzed using a thematic analysis approach. The study adhered to the Standards for Reporting Qualitative Research reporting guideline.
Result: The biopsychosocial burden of patients with peripheral facial paralysis can be summarized into four themes: 1. Impaired physiological functions, (2) The psychosocial impact, (3) The impacts of social roles and relationships, and (4) Coping strategies and hope. The core finding was that patients' suffering is deeply socialized. Patients experienced "relational shame," where their disfigurement was perceived as a familial "loss of face," which manifested as "intergenerational anxiety."
Conclusion: The biopsychosocial burden of patients with peripheral facial paralysis in a Chinese cultural context extends significantly beyond individual physical and psychological distress to include profound social and familial consequences. These findings highlight the critical need for a comprehensive, culturally sensitive, and family-centered care model to address the complex biopsychosocial needs identified in this patient population.
