Title : Standards and principles for designing and managing advanced, intelligent and ethical health ecosystems
Abstract:
Advancing from phenomenological, evidence-based, person-centered, and personalized care, health ecosystems currently undergo a transformation towards personalized, preventive, predictive, participative precision medicine (5PM), supported by technology. It considers individual health status, conditions, genetic and genomic dispositions in personal social, occupational, environmental and behavioral context, understanding the pathology of diseases and turning health and social care from reactive to proactive. Thereby, we have to enable communication and cooperation between all actors from different knowledge spaces including the subject of care, representing different disciplines, using different methodologies, perspectives, intentions, languages, etc., based on different educations and skills. Therefore, the knowledge-based, multidisciplinary, highly complex and highly dynamic 5PM ecosystem must be consistently and formally represented. The outcome is a system-theoretical, context-sensitive, architecture-centric, ontology-based, policy-driven approach for designing and managing intelligent, ethical and sustainable 5PM ecosystems, developed by the author and internationally standardized. The deployment of the approach is meanwhile defined by leading standards developing organizations such as ISO, CEN, IEEE, etc., as mandatory for all projects covering more than just one domain.
Audience Take Away:
- The methodology for formally representing and managing multi-domain ecosystems and their knowledge spaces as systems of systems will be introduced in detail.
- The role of ontologies will be explained and exemplified.
- ISO 23903 Interoperability and Integration Reference Architecture – Model and Framework will be introduced and enriched by practical examples.
- Ethical aspects including security and privacy challenges and solutions will be especially highlighted.