Title : The effects of compassion-focused intervention on stigma in young people with inflammatory bowel disease
Abstract:
Background: Inflammatory bowel diseases (IBD), which include Crohn's disease (CD) and Ulcerative colitis (UC), are a group of chronic, lifelong diseases characterized by recurrent inflammation of the bowel. Due to the prolonged and repeated onset of IBD, various complications often occur, seriously affecting the emotional and social abilities of patients, and the main affected population is young people. More than 80% of IBD patients have stigma, most of which are young people. Therefore, it is of practical significance to seek an intervention that can scientifically and effectively help them to reduce or eliminate stigma and promote interpersonal communication.
Aims: To explore the applicability and effectiveness of the compassion-focused intervention program for stigma in young patients with inflammatory bowel disease.
Methods: Thirty-six cases of young IBD patients attending two tertiary hospitals in Yangzhou from April 2022 to August 2022 were selected by purposive sampling method, and they were randomly divided into two groups. The control group was given routine nursing instructions and IBD manuals, while the experimental group was given the compassion-focused intervention program of stigma in young patients with inflammatory bowel disease. The Social Impact Scale (SIS) were used to measure the stigma of young patients with inflammatory bowel disease before the intervention, (SES) were measured before (T0) and at the completion of the intervention (T1), and the differences between the two groups were compared in terms of observed indicators. Self-compassion Scale (SCS), Perceived Social Support Scale (PSSS), and Self Esteem Scale (SES) were measured as second outcomes.
Results: The results showed that the baseline data of the two groups of patients were comparable, and the differences were not statistically significant (P > 0.05). After the intervention, patients in the experimental group had better disease stigma level (t = -6.323, P < 0.01), self-compassion level (t = 3.569, P < 0.01), perceived social support (t = 2.078, P < 0.05), self-esteem level (t = 2.529, P < 0.05) and disease activity (c2 = 5.236, P < 0.05) than the control group.
Conclusion: Compassion-focused intervention program for young patients with inflammatory bowel disease can effectively reduce the level of stigma, improve the level of social support and self-compassion of patients, and change the health status of patients with the disease.
Keywords: Inflammatory bowel disease; Youth; Stigma; Self-compassion; Intervention research
Audience Take Away Notes:
- Follow the presentation to focus on stigma in IBD, especially among young people.
- This is an intervention program constructed through literature review and expert consultation, which can help inspire audience who want to implement program construction by their own.
- This is an online intervention that can provide ideas for listeners who want to do an intervention remotely
